- Berloni Foundation Against Thalassemia
 - Cooley's Anemia Foundation
- Funds medical research, patient services, public information, and professional education to combat thalassemia.
- Fight Against Thalassemia, The
- Features personal experience, resources, and Rochester chapter information.
- Information Center for Sickle Cell and Thalassemia
- By Kenneth R Bridges from the University of Harvard.
- Sarawak Thalassaemia Society
- Nonprofit Malaysian organisation in acting as an informational network and support group for Thalassaemic patients and families.
- Thalassaemia & Sickle Cell Unit (TASC)
- Leicester, U.K.-based research organisation providing educational opportunities, consultancy, and links to support and information services for the conditions of Sickle Cell Anaemia and Thalassemia.
- Thalassaemia Society of Pakistan
- Nonprofit organisation that educates the public about the disease and ways to prevent it.
- Thalassemia
- Thalassemia.com
- Featuring medical, genetic, psychosocial, transfusion, and resource information on thalassemia.
- Trials & Tribulations of a Thalassaemic Major
- Describes the experiences of a Thalassaemic patient with information about Desferal, Defereiprone, L1, Kelfer, blood transfusions, and life in general
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