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Canadian Porphyria Foundation
- Working to improve the quality of life for people affected by porphyria.
Foundation for Erytropoetic Proto Porphyria (EPP)
- Includes explanation of EPP, articles, and links to further information. Also in Dutch.
Porph Forum, The
- With information and links about Acute Intermittent Porphyria.
Porphyria: A Patient's Guide
Porphyria: The Unknown Disease
- Provides a symptom checklist, testing information, and a glossary.
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Porphyria
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