- Lewy Body Dementia Association, Inc.
 - Founded to provide information for patients with Lewy Body Dementia and their caregivers. Features description of symptoms and links. - Lewy Body Society, The
- U.K.-based nonprofit organisation dedicated to raise awareness of dementia with Lewy bodies amongst the public, to assist patients and professionals, as well as to support research into the disease.
- Toronto Dementia Network
- Network of organisations and individuals dedicated to improving the system of care for persons with dementia, their families, and caregivers.
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