Fanconi Anemia Research Fund - Mission is to find effective treatments and a cure for Fanconi Anaemia, and to provide education and support services to affected families worldwide.
Fanconi Anemia UK - Includes information for sufferers and their supporters, as well as for doctors and physicians.
Hope for Henry Foundation - Dedicated to educating people about Fanconi anaemia (FA), a genetic blood deficiency that can lead to the heart defect known as tetralogy of fallot.
