- Barth Syndrome Foundation
 - Intending to guide the search for a cure, support and educate physicians, and to create a caring community for families affected by this genetic disorder that affects males. In multiple languages. - Complete Barth Syndrome Page
- With information on Barth Syndrome, a genetic condition that primarily affects the heart.
- NINDS Barth Syndrome Information Page
- Description of the rare congenital metabolic and neuromuscular disorder that affects boys.
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